Collaboration Station is a new interactive web-based platform developed with families, for families, at SSCY. Its goal is to encourage the exchange of important experience-based knowledge through stories, which our previous research showed was a priority for both families and clinicians interested in improving family centered research and care. We now seek to understand the experiences of neurodiverse youth, their siblings, and their parents or guardians through storytelling within the living lab. We hope to create a supportive online community where individuals share and learn from the experiences of others, across the categories of fun, function, friends, future, function and fitness. To start, we are seeking 30-40 neurodiverse youth who have received services at SSCY, their siblings, and parents, to register as a Collaboration Station user, and share their short stories each month for over 6 months. We will create a creative resource to share the findings at the completion of the study. We aim to create an accessible way to engage and understand families’ lived experiences, and to share this information widely to encourage family centered care and research, and shared learning through experience.
