The threat of the COVID-19 pandemic has increased the challenges experienced by families of children with disabilities as well as widened the gaps in our healthcare system for those who are disabled. The pandemic has changed how children with disabilities receive care including a greater focus on the use of virtual care. We are conducting a research study to understand how the changing care practices during COVID-19 has affected families of children with disabilities and to hear from families what care should look like for their child going forward and for future health crises. We will develop a model of care based on the recommendations of families of children with disabilities as well as service providers of the ways to improve services and supports for families for care in current times and future health crises.
We would like to hear from families about their preferred healthcare and social service needs, as well as their recommendations of the ways to improve services and supports for children with disabilities. Families will be invited to take part in individual, family and focus group interviews. Service providers will also be asked to share their views on ways to improve services and supports for families of children with disabilities. Families and service providers have the option to take part in virtual or in-person interviews.
If you would like more information on this project please contact ingauge@umanitoba.ca